FDA Safety Alert - May 10, 2005 - Neurostimulation & MRI - Page 2 - Interstitial Cystitis (ICN) Support Forum

KIM W · 12-01-2005, 08:56 AM

Hello all, Just an update to let you all know that I am going in the hospital on Tues. Dec. 6th to have my interstim and wires moved. Wish me luck and say a prayer for me. If anyone else here has had to have thier enitire unit moved please email me.
Thanks
Happy Holidays to you all.
Kim

Dusty · 12-01-2005, 10:46 AM

Kim,
I had my entire unit moved from the right side to the left side. A different set of surgeons did this surgery. I traveled out of state for it. Then a had a completely different surgeon take it out.
Best of luck to you,
Dusty

patricia1 · 12-01-2005, 10:58 AM

I also had my unit and wires moved also. Removed from right hip area to left butt area. I had a hard time during my revision. Let me know if I can help in anyway possible.

KIM W · 12-01-2005, 11:15 AM

How Were You All Cut? How Long To Recover? Did It Work When It Was Moved? Sorry So Many Questions Just A Little Nervous.
Thanks
Kim

patricia1 · 12-02-2005, 06:18 AM

I had three new cuts. 1 from where they removed the old unit. 2 where the new one was put in in the butt. 3 another incision below the orig wire incision where new wires went. 2 where straight across and 1 up and down.

Recovery took me a good 3 wks or longer. The second surgery was much much harder for me. I had a lot of scar tissue and the old units wires were attached differently now. I figured lortabs 10 would be plenty for pain, but the were not I had to call in Tylox the next day. I was real real stiff for several days also.

My new unit is still not working right for me. Out of 4 wires on 2 work right. So I am still not happy.

Just be prepared that the 2nd one could possible be alot harder than the first I was totally unprepared for it.

iris2 · 11-09-2009, 08:15 AM

I was told it was ok to get an MRI. I had started having some stomach aches about three weeks after my permanent surgery. About a month or two ago I had such a terrible stomach ache for two days I finally started getting dehydrated and delusional. I told them in the ER about the Interstim and they said an MRI was OK. I ended up having an appendectomy. Within about a week was when I started having constant constipation. I just had figured that the stomach ache had been constipation but so gradual I did not notice. It was different , a lot so now I am wondering if some damage was done with the MRI? I read all the information from Medtronics and never saw anything about MRI's? There is information on their site. I will look there. So where do I go for truth? A neurologist? My uro denys anything is wrong.
While I was writing this the pharmacy called and said my uro changed my instills to once a week and no sodium bicarb so they only last 4 hours so I cannot use it when I need it. He is definitely **.... with me. I guess he does not want a patient who has problems with the Interstim. It might ruin his almost perfect statistics with them at least that is what he told me when I asked before I let him do it.

iris

iris2 · 11-09-2009, 08:27 AM

I am too upset to post today. I think now I had a CT scan not an MRI. I know I mentioned it both times. I am relieved I remembered that am terribly sorry to have bothered all of you. My doc office just said they will only let me use the rescue instills twice a week and no bicarb so they will only last 4 hours.

iris

tigger_gal · 11-09-2009, 09:26 AM

I am glad you had a ct scan and not an mri. Did your doctor say why you cannot use the sodium bicarb now? I hope you feel better.

iris2 · 11-09-2009, 09:58 AM

I spoke with his nurse and she said he would let me use it twice a week as apposed to up to three times a day and I asked about only being able to use it up to 4 hours after it is made making it almost useless for me as a rescue instilll and she said she was only the go between. That was the answer.

iris